Tube-free Stella: Day 1
Taken just after the tube came out. Stella is off and running. I am so proud of her. In short, she is responding well and our confidence is growing. She can do this. It is expected that she will lose a...
View ArticleTube-free Stella: Day 2
Can’t sleep so I thought I’d write a quick update. Weaning seems to be going well. Stella is happy and eating pretty often. As is expected over the course of her complete transition from the tube to...
View ArticleDays 22 through 25: Stella got her groove back
As Stella’s occupational therapist put it, “Stella has internalized the joy of eating.” Her feeding aversion is, well, history. A memory. Though not a distant memory, of course. We still get nervous if...
View ArticleA freakout. A rant. And endless gratitude.
Don't worry, it's just prunes. Early this afternoon, Stella got upset and took only 100 mls from the bottle. It was really weird. All my fears and worries came rushing back. Granted, she took around...
View ArticlePlease no.
Stella has been getting more and more difficult around eating again and I am starting to freak out about it. She is starting to refuse the bottle more and more. She doesn’t want to eat upon waking up...
View ArticleLucky seven. (Months, that is.)
Stella's got what they call "stage presence." On St. Patrick’s Day, Stella turned seven months old. I’m pretty sure that means she can get a driver’s permit. And maybe even a part-time job. At the very...
View ArticleOpen wide
So, as I reported earlier, we visited Seattle Children’s Hospital this week to see Robin, Stella’s wonderful and very wise occupational therapist. We wanted to check in and see how Stella is doing with...
View ArticleHooray for Heath, his mom, and inspiring tube weaning success!
Meet Heath. Ain't he sweet? Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well...
View ArticleTaking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at...
View ArticleMore on the risks of NG tubes
A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid...
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